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Share Your Story

Thank you for sharing your story with us. We hope that COMPARE-UF can be a community of women who learn from one another’s experiences living with fibroids.

Here are some questions to consider to help you start:

  • How did you first learn about fibroids?
  • What symptoms were you having?
  • How have fibroids affected your quality of life? Are there things you don’t do because of your fibroids?
  • How have fibroids affected your family?
  • Have you had any experiences with fibroids that you can laugh about now?

Submit your story through our secure website. We will ask for your permission before posting.

Story Submissions

How did you first learn about fibroids?

By an annual pelvic exam with a new primary care physician. She felt something abnormal in my abdomen and referred me to get an ultrasound

What symptoms were you having?

Lower back/ sacroiliac joint pain, urinary incontinence, abdominal/pelvic pain, some spotting between periods but no heavy bleeding.

How have fibroids affected your quality of life? Are there things you don’t do because of your fibroids?

I have constant low-grade pain in my lower abdomen. I have urinary urgency and some incontinence issues, although it has gotten better with a lot of focused attention on my transverse abdominal strength and pelvic floor. I have instances where there is severe tension in my abdomen and I cannot evacuate urinary or fecal matter, even though I know I need to and am getting the urgency feedback to go to the bathroom.

How have fibroids affected your family?

Yes. My mother had a hysterectomy (pre-menopause) in her mid-40’s.

Have you had any experiences with fibroids that you can laugh about now?

Not yet. Maybe, being less urinary incontinent?