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Learn about COMPARE-UF at the University of North Carolina (UNC), one of many sites across the country participating in the registry.
Launching her career in broadcast media as a freshly minted graduate from the University of Maryland, Paula attributed her first experience with the symptoms of uterine fibroids — heavy and unpredictable menstrual bleeding — with stress from her new job. And for two years, she just dealt with it, making sure she always had plenty of heavy-duty pads and a change of clothes.
PaSean Wilson-Ashley, actress, documentary film collaborator, and owner of Mama Aunties Vegan Baked Goodies, shares her experience living with uterine fibroids.
PaSean is a seeker of healing and an advocate for women with uterine fibroids. Her journey began in her early 30s when she received her first diagnosis of uterine fibroids, which, because at the time they were small, her doctor recommended the “watch and wait” method.
Justine Atkinson’s journey with uterine fibroids began nearly three years ago, when she became the Executive Director of Fibroid Relief (www.fibroidrelief.org). Before that she was a Vice President in the women’s health practice of a large public relations (PR) agency in Washington, DC.
Tanika Gray, broadcast journalist, communications professional, and Founder and Executive director of The White Dress Project is working to make July National Fibroid Awareness month.
“We are suffering with this issue but we aren’t talking about it. People aren’t taking fibroids seriously. Where is the research? I was inspired to do something to help.”
That’s why Tanika Gray started The White Dress Project, an online community of women who share their experience and hope about life with fibroids. “The image of a white dress conjures so much anxiety and stress in women with fibroids. I took a fashion angle because I work in the media and I knew that this would be a unique way of telling the fibroid story.”
Amy Olson Miller, Project Manager for the Department of BioHealth Informatics at the School of Informatics and Computing at Indiana University-Purdue University in Indianapolis, shares her insight and experience of living with — and without — uterine fibroids.
There are a lot of things that Amy Miller doesn’t miss since having a hysterectomy for her uterine fibroids in 2015. Starting with her diagnosis at age 27 and continuing for the next 20 years, Amy coped with the symptoms and situations that women who have fibroids are all too familiar with.
She doesn’t miss:
Read the transcript of the October 16, 2016 Tweetchat with Mayo Clinic
Shilpa H. Amin, MD, FAAFP, MBSc, clinician and patient advocate at Inova Health System in Virginia, has a unique perspective on women with uterine fibroids – as a patient, a primary care (family – geriatrics) physician, and as former Agency for Healthcare Research and Quality (AHRQ) Effective Healthcare Program Medical Officer.
“Uterine fibroids impact the mind, body, and spirit of a woman. This condition permeates a woman’s life – how she functions. Most women have multiple roles that involve personal, professional, social, and family caregiving duties. The difficult symptoms of uterine fibroids have repercussions in multiple facets of a woman’s life.” Shilpa says.